Skip to content

King for a Day

Luke got to be an ambassador for JDRF/Nordstrom’s massive Beat the Bridge walk/run this year. It was started by a family 30 years ago when their son was diagnosed. Co-workers at Nordstrom chipped in, and it has grown into a $1.5M+ event with roughly 30k people turning out to walk and run.
It was admittedly a proud parent moment. Our family was part of the promotional video, Luke got to be on radio and TV, and he was indulged by the two older ambassadors and the many corporate teams we visited leading up to the event.
I was inspired and humbled by the people we met. Every corporate team had people walking for family or friends, and one team captain quietly told me she’d been doing Beat the Bridge for 20 years, since one of her two step-sons with T1D had died.  Many friends signed up to walk and run, and family and friends from all over contributed. We hoped Luke would see T1D as bringing something good his way for a change. We were coming out of a rough year with him realizing that T1D isn’t going away, he can’t control it, and not everyone has to suffer from its nasty low/high blood sugars.
He did revel in the attention, but he surprised me by shifting through different reactions to the event and T1D in just those few months. (Then again, why would something involving T1D be simple?)

  • First reaction: “I’m king of Beat the Bridge!” How else do you explain the concept of “ambassador” to a four-year-old?
  • Next reaction as the TV promos started running: “Hey, did you see me on TV? I’m on TV!”
  • But then: “I’m mad, because Beat the Bridge will stop diabetes, and I like to watch Batman when we do pod changes.” Uh, glad we’ve made pod changes so attractive!
  • And: “I don’t want anyone to see me on TV, because then they’ll know I have diabetes.” I think the cat’s out of the bag on that one, kiddo.
  • The morning after the event: “Beat the Bridge is over? Is diabetes over now?” Cue sound of parent’s heart breaking. Explain that scientists are still working on it, and people all over the country are doing walks and selling lemonade to get more money for scientists to fix diabetes.
  • “Oh. I want to give all my money to the scientists.” Luke has been saving for an entire year to buy a Playmobile Falcon Knight castle, and his piggy bank is stuffed.
    Pause. “Well, half the money – I still want the castle.” Sanity restored.

BTBHero

Advertisements

Stop That Heist! (Wordless Wednesday)

“Look, Mom! The bad guy is stealing my strip!”
StopThatHeist

So much depends on the hot chocolate…

“Luke’s blood sugar is at 38,” came the call from preschool. “Do you want to change anything?”

I squelched the chill down my spine – that was LOW. We chatted about how much juice and putting on a -10% temp basal. I got off the phone and started to go mental. It has been a week of toggling between the smallest increments the pump has, and they’re still all too much or too little. (Luke’s so sensitive to insulin that if someone sneezes, I half expect blood sugar to drop due to the change in barometric pressure.)

Then I happened to pick up his cup from breakfast – still full of hot chocolate. One quarter of his breakfast insulin uncovered, and low BG was explained. The construction work going on next door probably distracted him from finishing.

so much depends
upon

a three ounce
cup

lid glazed with
cocoa

untouched by
the small boy

(Apologies to William Carlos Williams!)

20130606-103421.jpg

Wordless Wednesday – belated Mother’s Day

20130529-085353.jpg

Wish he didn’t have to include diabetes in a Mother’s Day card, but still – it’s sweet. 🙂